- “I've learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel.”
- Maya Angelou
Posted: April 15th, 2014
When Ted Harada started blogging about his experience in our Phase I ALS trial, his remarkable improvement lent early hope to an entire population of patients and caregivers. Several months ago, a patient in our Phase II trial named April started blogging about her experiences. Both of these patients started on their public journey well before their surgery, and before they had any idea of how they would do. Their sole concern was to share their experiences with their community. It takes an amazing amount of courage to share the terror and pain of a diagnosis like ALS, and as they began to understand that they were improving, to share their joy and even private feelings of guilt combined with their hopes and fears in even greater detail and depth. No one knows better than they, what hope can do for members of this community.
- “Every man gotta right to decide his own destiny”
- Bob Marley
Posted: December 3rd, 2013
The “Right to Try” bill is making its way through the (now infamous) Arizona State Legislature. The basic premise of the Bill is that patients with fatal and incurable diseases should be able to choose for themselves whether or not to try an experimental drug. The Bill’s authors state that they should not be constrained by the FDA’s approval process.
- “My gift is my song and this one's for you”
- Elton John
Posted: December 3rd, 2013
Over the past few months, one of the patients in our Phase II trial to treat ALS has been posting blogs and pictures as she goes through the process of enrollment, surgery and recovery. Her most recent blog can be found here.
- “Both a little scared, Neither one prepared, Beauty and the Beast”
- Lyrics from “Beauty and the Beast”
Writers: Tim Rice, Bruce Healey, Howard Elliott Ashman, Alan Menken
Posted: October 30th, 2013
There is a rather surprising but equally clear movement in the life sciences world these days towards the development of therapies for rare diseases. In the (not too distant) past, development of potential therapies to treat orphan indications, rare diseases and ultra rare diseases was the province of small University labs in conjunction with patient advocacy groups and a few small biotech companies here and there. But things are changing rapidly.
Posted: October 25th, 2013
(/noʊ.əˈtrɒpɨks/ noh-ə-trop-iks), also referred to as smart drugs, memory enhancers, neuro enhancers, cognitive enhancers, and intelligence enhancers, are drugs, supplements, nutraceuticals, and functional foods that purportedly improve mental functions such as cognition, memory, intelligence, motivation, attention, and concentration.